Today we made our trip to Children’s. There really was no new news with the exception of learning a second urine test done on Jayden showed higher levels of an enzyme consistant with MPS III, Sanflippo Syndrome. However, when we met the genetic doctor that specializes in MPS, she was still suspicious of Hunter’s after seeing Jayden and ordered a retest for Hunters Syndrome.
Is God changing His mind? I wonder. Could it be He is taking into consideration the body of Christ crying out for Jayden? We know God is big and no matter if the diagnosis is Hunters or Sanflippo, it is part of His will. He will, and already is, using this to bring Him glory. I was thinking, Jayden will really not realize his body is fading when it does happen. What he will know is people loving him, smiles he gives and receives, and joy in the moments of life.
Isn’t that really a better life? What if we were told that we would never have to worry about pimples, divorce, fitting in, what people think of us, living luke-warm, or death? Jayden will not have to worry about any of that. Although we, “normal” people may live longer…or differently…does that really mean God is glorified with our life in the way it will be in Jayden’s? I wonder.
We struggle more about the worldly things. Like will Jayden suffer, will kids make fun of him, how will we handle watching our son live with this? But Jayden won’t be thinking these things. It’s all about perspective. Don’t get me wrong…we would do anything to have this “awakening” to God without having to watch our little boy suffer. We would give anything hear the doctors say they are wrong and he is fine. But we know God is at work even when we don’t grasp why. God thing He sees ahead of us so we don’t have to.
If you havn’t already, would you please add Brooklyn to your prayers? We find out tomorrow or Friday the results of her MPS test. Pray that she falls into the 75% and doesn’t have MPS. Thank you to all of you who are walking with us. We couldn’t do it without you. I apologize in advance if I don’t reply to e-mails or texts…or get thank you cards out. I know you understand but please take this as our thank you!
Do not fear, for I am with you; do not anxiously look about you for I am your God. I will strengthen you, surely I will help you. Surely, I will uphold you with My righteous right hand. Isaiah 41:10
The goodness of the Lord will be poured out to those who wait for Him, to the person who seeks Him. Lamentations 3:25
Now to Him who is able to do exceeding abundantly beyond all that we ask or think according to the power that works within us. Ephesians 3:20
Do not fear or be dismayed because of this great multitude, for the battle is not yours, but Gods. 2 Chronicles 20:15