October 6, 2011 — In October of 2009, brother and sister, Jayden and Brooklyn Boyce were diagnosed with a rare genetic disorder called Sanfilippo Syndrome. Sanfilippo Syndrome is a genetic disease that makes the body unable to properly break down long chains of sugar molecules, resulting in developmental delays and deteriorating mental and physical status. There is no known cure for this disease and those affected typically only live into their teenage years.
Since their diagnosis, family, friends, and even strangers have given generously to help build a handicap-accessible home for Jayden and Brooklyn’s future needs. Their efforts are part of a campaign called, Build with the Boyces. Spearheaded by family and friends, the campaign has raised enough money to break ground on their new home, conveniently located next to family who can offer a much-needed extra hand.
The benefits of having a handicap-accessible home is that it will give Jayden and Brooklyn a safe place to live and play. It will also allow their devoted parents, Justin and Stefanie, to spend better quality time with their kids, without the stress of having to watch their every move in fear that they may get hurt.
“We feel so blessed and humbled at the generosity of friends, family and strangers who have come alongside us to make a dream for our children a reality,” said Stefanie Boyce. “What an amazing gift we have been given.”
It will take millions of dollars, years of research, and a miracle to find treatment or a cure in Jayden and Brooklyn’s lifetime. Until that happens, a safe home is the best gift they can receive.
If you would like to help the Boyce family raise the additional money needed to complete their home, please visit http://www.buildwiththeboyces.com. There, you can learn more about the family and their story, donate, and also keep up-to-date on the home construction with a time-lapse video.
For immediate release October 6, 2011