Thanks for stopping by! I’m Stefanie, just your average midwest mama navigating an anything but average story. You see, my older two children have a regressive and terminal illness called Sanfilippo Syndrome. And the disease itself is as bad as it sounds. Children progress until about the age of 2, then slowly lose the ability to walk, talk, eat, eventually passing away in their teen years.
Awful, I know. But my kids? They’re amazing. Sanfilippo is part of them, but not all of them. They teach me so much about life, love, and what’s really important. And, they make me smile, a lot. I also have a daughter who came after their diagnosis who is neurotypical-how she got here is a story in itself!
They’re a big part of my life, but they aren’t all of it. I have these amazing friends, fantastic hubby, and big ideas. I live in a house built by our community, on a family road, Boyce Lane. You guessed it, right next door to my in-laws.
You can catch my everyday musings on my Facebook Page. My blog features my longer writings and special guest blogs. If you are a Special Needs mom, I have a place just for you! MORE THAN A LABEL is a community of special needs moms seeking Jesus. You are not alone!
My favorite part is getting to connect with you, so make sure to come say hi if I am in your neck of the woods! You can find out where I’ll be speaking and if you don’t see your event on the list, feel free to use the speaker form or contact form to connect.
Most of all, I love Jesus, big time. I believe He is who He says He is. But living like He’s in control is a bit more difficult. That’s why I say I’m going from TYPE A to PLAN B. And PLAN B is messy and hard, but crazy beautiful. And my guess is, you’re navigating PLAN B too.
So let’s do this-together.