Right after Brooklyn passed, a family friend printed off some pictures from when Brooklyn was younger during a season Justin volunteered with One-on-One, a inner-city Zion basketball camp. During camp, I would bring the kids up and they would run around and make friends with all the coaches and players. Jayden would dribble balls and shoot hoops, Brooklyn would dance and sing.
One of the pictures, now a bookmark in Justin’s Bible, is a picture of B wearing a shirt that says, “My heart belongs to Dad.” Sometimes, I find him fighting tears as he looks at it. They sure share a special bond.
I am not sure if this is true of every family, but it feels true for us. There’s just something different about the bond shared between a mother and a son, a father and a daughter. Not better or worse, more or less, just different. A boy needs his mom and a girl needs her dad. (I know both need both, but you get it.)
Maybe it has to do with protection. A dad protects his girl and raises his son to be a protector. A mother protects her son and raises her daughter to be a protector. Maybe it’s simply because Jayden was like his dad, and Brooklyn was a lot like me.
I don’t know why, I just know it was true for us and impacts how we are grieving.
Justin’s words about his sweet B that he shared at her funeral are so precious and the lessons he learned from her are really lessons for us all. Lessons about living life to the fullest, real heroism, love, and joy.
Continue reading “Everlasting Joy: A father’s reflections from his daughter’s funeral”
So I just spent 15 minutes typing this and it all deleted…so here I go again.
We found out Jayden does not have Hunters Syndrome. So what does that mean? It means that Jayden will have more blood work done to see if it is MPS III, Sanflippo Syndrome or another form of MPS, results take 5 days so we will hear back Tues or sooner. Pray for sooner. Also, it means Brooklyn is now 25% at risk because it is a recessive x-linked disorder that Justin and I now know we pass down. Pray Brooklyn does not have MPS. She will have a urine test done tomorrow when we go to Children’s in the city to meet with an expert on MPS at 11AM. We should get results back Friday. Right now, the only two syndromes with enzyme replacement therapy are Hurlers and Hunters which have been ruled out. Pray that whatever Jayden (and potentially Brooklyn) has will have a treatment/cure found in their lifetime.
We continue to hope and pray and lean on all our friends and family. In the last 24 hours we have had a prayer vigil set up by our dear friend, Katie where people prayed all through the night. We had the staff of Immanuel pray over us. We continue to receive e-mails and text of people praying. We had three of our friends bring us dinner last night and stay to share tears, laughs and stories. I believe God is listening and providing exactly what we need. We are feeling an unexplainable peace and KNOW it is God. We are ready for the “worst” and we are hoping for the best. We know God is not scrambling but we believe God is changing his mind due to your prayers. Pray we will continue to have an eternal perspective.
I also spoke with a woman from the MPS national society. She said we are doing everything we could do. She also said that it is strange that with Jayden’s presenting symptoms the results didn’t show MPS II (Hunters) because he doesn’t exactly fit the other MPS descriptions. Does this mean anything…we don’t know but we feel God may just be up to something. I said I would wear a sack cloth if God did a miracle but don’t hold me to that…I love Old Navy too much!
We continue to rely on you, and thank God for you in our prayers. You sustain our minutes, hours, and days of waiting. We rejoice that people who don’t regularly pray are praying, and Jayden is already doing greater things for the kingdom than any other 3 year old I know. We are on earth to draw others to Christ and this is what his life is doing in astounding ways now and will continue to do throughout his lifetime–long or short! I hope God will be able to say the same for us all!
Love you and will keep updating as we hear.
“These things I have spoken to you, that in Me you may have peace. In the world you will have tribulation; but be of good cheer, I have overcome the world.” (John 16:33 NKJV)
(thanks for this Burt!)
Brooklyn is finally here!
Brooklyn Kayelee Boyce
July 14, 2009
7 lb 12 oz 19 in
Continue reading “BROOKLYN KAYELEE BOYCE”