updates regarding gene therapy, please read and share

Thank you, friends!
The response to my blog post and Eliza’s video, is amazing! Not only has the video gone viral, it is causing other media attention. Because of your sharing on Facebook, my last blog has over 3,000 views!

Continue reading “updates regarding gene therapy, please read and share”

A [potential] cure for Sanfilippo is here!

Dear friends and family-


It is with great joy and anticipation I write this! God has heard your prayers. 


There is a cure for Sanfilippo! Yes, you heard right! It is a miracle!  The very thing you have been praying for on our behalf is a reality. 


Continue reading “A [potential] cure for Sanfilippo is here!”