Ever heard of AV9?
Until Ohio. Until gene therapy headed into the neighborhood of Sanfilippo.
Last Sunday, we packed the kids, the strollers, and the air mattresses. We shipped Ellie to grandma’s and headed off on our seven hour journey to Columbus, Ohio. We settled into suite 319 at the Ronald McDonald house and thanked God for a good car ride.
Dear friends and family-
There is a cure for Sanfilippo! Yes, you heard right! It is a miracle! The very thing you have been praying for on our behalf is a reality.