Jayden and Brooklyn spend a ton of time at doctors offices. Days of being weighed, touched, poked, and tested. In fact, we just got back from participating in the Natural History Study of Sanfilippo being completed in Columbus, Ohio. We started in July and this was our six month check up. I am sure you all want the details because the doctors there are working on gene therapy-a potential cure/treatment for children with Sanfilippo.
Thank you, friends!
The response to my blog post and Eliza’s video, is amazing! Not only has the video gone viral, it is causing other media attention. Because of your sharing on Facebook, my last blog has over 3,000 views!
Dear friends and family-
There is a cure for Sanfilippo! Yes, you heard right! It is a miracle! The very thing you have been praying for on our behalf is a reality.