Thanks for stopping by! I’m Stefanie, just your average midwest mama navigating an anything but average story. You see, my older two children have a regressive and terminal illness called Sanfilippo Syndrome. And the disease itself is as bad as it sounds. Children progress until about the age of 2, then slowly lose the ability to walk, talk, eat, eventually passing away in their teen years.

Awful, I know. But my kids? They’re amazing. Sanfilippo is part of them, but not all of them. They teach me so much about life, love, and what’s really important. And, they make me smile, a lot. I also have a daughter who came after their diagnosis who is neurotypical-how she got here is a story in itself!

They’re a big part of my life, but they aren’t all of it. I have these amazing friends, fantastic hubby, and big ideas. I live in a house built by our community, on a family road, Boyce Lane. You guessed it, right next door to my in-laws.

You can catch my everyday musings on my Facebook Page. My blog features my longer writings and special guest blogs. If you are a Special Needs mom, I have a place just for you! MORE THAN A LABEL is a community of special needs moms seeking Jesus. You are not alone!

My favorite part is getting to connect with you, so make sure to come say hi if I am in your neck of the woods! You can find out where I’ll be speaking and if you don’t see your event on the list, feel free to use the speaker form or contact form to connect.

Most of all, I love Jesus, big time. I believe He is who He says He is. But living like He’s in control is a bit more difficult. That’s why I say I’m going from TYPE A to PLAN B. And PLAN B is messy and hard, but crazy beautiful. And my guess is, you’re navigating PLAN B too.

So let’s do this-together.

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Brooklyn, Stefanie, Jayden, Justin and Elliotte
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Stefanie Boyce is a writer and speaker, best known for her unique perspective when it comes to difficult circumstances. She is no stranger to the pain and beauty of this world, and the tension that comes from living in the midst of both. Most importantly, she is a wife, mother of 3, and an inspiration to many.

A native of Rockford, IL, Stefanie attended Rockford Lutheran High School, and then went on to attend, and graduate from Eastern Illinois University in 2002 with a Bachelor’s degree in Psychology. She met her husband, Justin, shortly after and married in 2004.

Over the years, Stefanie has worked as a crisis line operator, shelter advocate, and community educator for a domestic violence agency, and most recently, in a variety of roles at Immanuel Church in Gurnee, IL. She was first hired on staff at Immanuel in the youth ministry department as administrative assistant, and eventually worked her way up to Interim Director of High School Ministry, where she helped shape the ministry with her passion for small groups and mentoring.

Before turning in her church keys to pursue writing and speaking, Stefanie used her creative talents as Director of Environmental Development at Immanuel, where she designed beautiful, functional spaces that were irresistible to guests and regular attenders alike.

In whatever role Stefanie is in, she has always found her way to the microphone, whether it has been in front of a community group educating them on domestic violence, or in front of high schoolers encouraging them to grow in their faith.

Stefanie started writing and speaking as a way to share the things she is learning from parenting her children, two of whom have a rare, regressive terminal disease, called Sanfilippo Syndrome.

In the midst of the pain and suffering that comes from knowing you are going to lose two of your children to an incurable disease, which most people would consider their worst nightmare, we see Stefanie’s strength. And she will be the first to say that it comes from her faith and trust in Christ.

On November 13 2017, Stefanie’s son, Jayden went to be with his Savior. He was a bright and gentle spirit who is dearly missed.

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Stefanie is best known for speaking about seeing life from a fresh perspective, whatever your circumstances, but can work with your specific topic or group. Just let us know what you are thinking when completing the form below. Thank you for considering Stefanie for your next event.

Possible Speaking Topics



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To inquire about Stefanie’s schedule, fees, and availability to speak, please visit her speaking page to complete the request form. Please allow 24 hours to respond. If you just wanna say, “Hi” or share your story, please use the form below.